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Looking Up?

Posted on 5/30/2010 04:51:00 PM In: , , , , , ,
Hey all,
I've had a frustrating week (not going to get into details, but just basically sick of CF), and forgot to tell everyone how my appointment last Thursday went.

It was no surprise that my PFTs were down about 20%, based on how I was feeling. I'm actually surprised they stayed that high (March, they were in the 90's, this time they were in the 70's). While 70's aren't my BEST, they aren't my WORST either. I was prescribed with oral antibiotics, a pill (Levaquin) only once a day. Yay! I'm also continuing inhaled antibiotics (TOBI), which I normally take every other month anyways.
lungs

BUT, I'm thankful that I won't have to change my wardrobe for IV's (confused? Here's a hint: my portacath is placed in a place where having it accessed means it's more comfortable to wear sports bras for 3 weeks. No me gusta.) Plus, I avoided the hospital and having to take a bath for 3 weeks. No me gusta tambien. So, all in all, a good and productive appointment.

Since I'm on the subject of doctors, I must say, I absolutely LOVE the new doctor (well, not really new anymore, but new to us since we've only seen her a couple times). Her name is Dr. Moser. She's a petite little spitfire of a doctor---just our type! She jumps on to ideas my mom has...not crazy ideas, just productive and GOOD ideas, that other doctors like Dr. Y would ignore. *Plays wicked witch theme*. Haha :D. Like, when my mom told her she supplemented me with 50,000 IUs of Vit. D a day for a month, she thought it was a great move on our part. I love equal patient-doctor relationships! My endocrinologist is also this way. How funny, they're both asian. I love asians. :D

Anyways, I'm glad I'm past this giving up stage of my CF teen life. I mean, for now at least. It's good to know I snapped out of it. Maybe it was the church this morning that switched my thinking. Love you God :).

I thought this quote/picture thingy would be appropriate for how I'm feeling :)


Anywhosers, adios world :)

Love,
Carly


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Fallen

Posted on 5/29/2010 09:55:00 PM In: ,
When your hope is gone,
& You can’t find any way out,
& You feel you’ve lost it all,
You say you feel the same self doubt-
I won’t fall this time;
I’m not going anywhere.
I’ll be right here by your side;
So stop me if you really care.


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Posted on 5/27/2010 09:57:00 PM
Why?
Why am I here?
If our destination is to be with the Lord,
and the way to get there is to Believe, and then die, then
Why do we wait so long?
Why do we go through struggles, and pain, and stress,
Why do we go through sadness, and sickness, and crying fits,
If all of us Believers go to the same place,
Why do we wait so long?
Why not now?
I don't get it.
I'm supposed to work hard every day.
I'm expected to throw my social life out the window.
I'm forced to breathe differently.
Why?
Am I supposed to keep myself healthy?
Or am I supposed to live my life to the fullest?
I'm confused.
I want so badly to give up.
I want so badly to live, and then die
Like any normal person would.
I'm not wanting to die now,
so don't misinterpret.
I just need some enlightenment.
Some motivation to live.
Someone to just explain,
Why?

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I've been feeling it...

Posted on 5/25/2010 07:15:00 PM In: , , ,
So lately I've been feeling down. Not sad, but sick. It's interesting; when I was younger, I never really knew when I was sick. Every time I needed IV or oral antibiotics it just seemed like "the routine" for fighting some bug. But I never really FELT the effects of the bugs until my teenage years.

Anyways, I've been feeling the bugs lately. My chest has been tighter, I've been congested in my lungs and sinuses, I've been coughing a lot more, I've been EXHAUSTED, and my blood sugars have shot up. I'm hoping my PFTs (pulmonary function tests) aren't too bad. The docs base what kind of antibiotic I'll need on three things: my PFT's, my culture (what's growing in my lungs), and how I've been feeling. If everything is on the downside, I usually opt for IV antibiotics, and if they aren't terrible, I go for oral.

I'm not sure how it works with the port and IVs. This is my first time accessing it (except for when I had it placed), so I don't know if I'd need a hospitalization. Even if I do, its no big deal. Just a tune-up.

Anywho, time for homework make-ups and a nap. *yawn*
:)

-Carly

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Aftershocks

Posted on 5/20/2010 07:31:00 PM In: , , ,
What are earthquakes? Earthquakes are the movement of the Earth's plates, causing disaster and destruction surrounding the epicenter. When an earthquake occurs, many people panic and worry for the next day or so, but what they don't prepare themselves for is what's coming next: the aftershocks.

These evil little spurts of catastrophe can be as powerful-or even more powerful- than the initial quake. Did anybody ever stop to think, maybe these rhythmic natural disasters resemble our life more than we thought?

I thought everything was beginning to return back to normal. I didn't brace myself for this aftershock.

It hit me hard, like a baseball bat over the head. I can't remember if it was as worse as the first earthquake, back almost 3 weeks ago on May 1st, because most of the memories of it are blurred now. All I know is that these aftershocks are causing damage.

She was a mentor, a friend, and an amazing advocate for CF. While I couldn't talk to her face-to-face (cystic fibrosis restricts that), I still found joy in talking to her over the web. Even in her toughest moments, she held on with a strong grasp, and always had a smile on her face. I wish I could say the same for myself right now.

I love you, Emily Haager.


Rest in peace.




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May Twenty-Ten.

Posted on 5/18/2010 09:41:00 PM In:

May is National Cystic Fibrosis Awareness Month.
                                                      

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Lindsay's Lungs

Posted on 5/17/2010 09:01:00 PM In: , ,
Great video from a fellow cyster :)


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The Point is...

Posted on 5/16/2010 10:17:00 PM
The point of this blog is to document my journeys.
The point is to provide an inside look into me.

The point is for people to read my posts and say, "Hey, Carly has cystic fibrosis, but cystic fibrosis doesn't have her."

 The point is to
(don't you love how I used the picture? Haha :D)




I love you all.
Come with me. :)

-Carly



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